Autism & Developmental Disabilities

ACF Office of Child Care Disability Inclusion in Child Care

The purpose of this project is to deploy a comprehensive stakeholder engagement and program assessment strategy to support a deeper understanding of the current landscape of disability inclusion, along with unique challenges, opportunities, perspectives and relevant factors impacting states, tribes, and territories as well as children with disabilities and their caregivers.

AFIRM for Paraeducators: Paraeducators' Use of Evidence-Based Practices to Increase Goal Attainment for Students with Autism

The dual increases in the prevalence of students with autism needing special education services and the number of paraeducators providing instruction in special education had created a need for preparing paraeducators to use evidence-based practices (EBPs) with autistic students in educational settings. The AFIRM for Paraeducators (AFP) program is a professional development program for paraeducators to be delivered by special education teachers in authentic educational settings. The purpose of this project is to examine the promise of the AFP program, through a pilot randomized control trial (RCT), for increasing paraeducators use of EBP with high fidelity of implementation and resultant goal attainment by autistic students receiving instruction.

Black Parents' Ethnic-Racial Socialization Practices Among Young Black Children with Disabilities

According to the U.S. Department of Education (2018), among students ages 3 through 21 served in special education, less than one-fifth are Black/African American (17.7 percent), but Black/African American students with disabilities account for more than one third (36.6 percent) of individuals who experienced disciplinary removal. Ethnic-racial socialization (ERS) practices have been found to mitigate the effects of such discrimination on children’s development. Yet, little is known about what these practices may look like for Black children with disabilities as ERS practices have typically been studied among typically developing, able-bodied children. This mixed-methods study aims to explore: 1) What types of ERS practices, and how frequent, do Black/African American parents/caregivers engage in with their children? 2) What is the relation between parents/caregivers’ ERS practices and children’s academic engagement, school disciplinary, and mental health outcomes? 3) What are the purposes and goals of Black/African American parents/caregivers engaging in ERS practices among their children with disabilities? and 4) What are some challenges that arise for Black parents/caregivers who communicate ERS practices to their children with disabilities?

Child Find ACCESS project

This model demonstration seeks to increase family uptake of developmental screenings and service enrollment of traditionally underserved populations by centering family and cultural voice throughout the implementation process.

Combining the self-determined learning model of instruction and peer supports

Developing an Empirically-Based Adaptation and Training Model for Intervention Scale-Up of Classroom Pivotal Response Teaching (CPRT)

The aims of this development and innovation project are to develop an interactive decision tree to inform adaptation of Classroom Pivotal Response Teaching (CPRT) for individual students, goals, and activities, and to develop an interactive on-line training and distance coaching model for teachers and paraprofessionals.

Examining adaptive peer-mediated interventions for preschoolers with autism spectrum disorder and limited or no spoken language

Inclusive STEM: Professional Development Series for Head Start Teachers in Maryland

The study presented in this proposal is a collaborative effort between the University of Maryland Baltimore County (UMBC) and the Frank Porter Graham Child Development Institute at the University of North Carolina at Chapel Hill. The intended outcomes of this program are to positively impact inclusion in early childhood classrooms and kindergarten readiness for children with disabilities. Consisting of a 4 day, in-person, professional development (PD) opportunity, virtual/in-person coaching, and Networked Improvement Community (NIC) meetings that are targeted to meet the individual support needs of the participants, we propose a three-phase process. Phase 1 includes targeted observations of inclusive STEM practices. Phase 2 includes a 4-day in-person PD opportunity, planned and facilitated by UMBC and STEMIE. PD sessions will be designed to provide participants with the opportunity to learn and expand their knowledge and sharpen their skills on inclusive STEM teaching. Phase 3 sessions will be developed based on observed needs of the participating teachers and support participants in using STEMIE resources (e.g. learning trajectories) within the scope of their own curriculum. This will be done via a series of individual coaching and NIC meetings to allow for collaborative problem solving with investigators serving as facilitators. The final phase (Phase 4) will include targeted observations of participants to assess progress.

Making Professional Development Work for Preschool Classroom Teams Serving Students With ASD: Adapting a PD Model Using Normalization Process Theory

This study will iteratively develop and test an adapted professional development model to be used with the Advancing Social-communication And Play intervention.

National Clearinghouse on Autism Evidence and Practice

The National Clearinghouse on Autism Evidence and Practice (NCAEP) is conducting a systematic review of the current intervention literature targeting individuals on the autism spectrum. NCAEP is a continuation of the evidence review that was completed by the National Professional Development Center on Autism Spectrum Disorder.

Parent's ethnic-racial socialization (ERS) practices among Black children with disabilities

Black families of children with disabilities face additional stress and difficulties because of their multiple marginalized statuses, particularly within the intersection between racism and ableism. These parents and caregivers may be tasked with teaching and conveying messages to their children about how to navigate social settings, like school, as a Black child with a disability. According to the U.S. Department of Education (2018), among students ages 3 through 21 served in special education, less than one-fifth are Black/African American (17.7 percent), but Black/African American students with disabilities account for more than one third (36.6 percent) of individuals who experienced disciplinary removal. Ethnic-racial socialization (ERS) practices have been found to mitigate the effects of such discrimination on children’s development. They are defined as verbal and nonverbal racial communication between families of color and their children about cultural heritage and pride, preparing youth for racial bias, and promoting healthy distrust of the dominant racial/ethnic group. ERS practices promote academic engagement and achievement and serve as a protective factor among Black youth amid racist discrimination. Yet, little is known about what these practices may look like for Black children with disabilities as ERS practices have typically been studied among able-bodied children. Ultimately, findings from this study seek to serve as a resource to educators, researchers, and policy makers who work with or on behalf of Black families and their young children with disabilities to aid them in developing best practices that are rooted in anti-racism, anti-bias, and equity.

Parent-implemented treatment for repetitive behaviors in children with ASD: Using a novel telehealth approach to increase service access

Project EXPRESS: EXamining interventions to PRomote Executive function and Social Skills

The purpose of this study is to evaluate two group-based treatments: (1) the Program for Education and Enrichment of Relational Skills (PEERS), which targets social skills, and (2) Unstuck and On Target (UOT), which targets executive function skills. The interventions are two 45-minute sessions per week across 16 weeks and will be implemented by school-based staff in middle schools in North Carolina and Southern California (San Diego area).

Racism and Resilience Among Black Autistic Children and Caregivers

Persistent, and quite pervasive, racial disparities have been found between Black, autistic children and their white, autistic peers. These disparities range from notable inequities in the timeliness of diagnosis to receipt of substandard services to their under-representation in research studies. While key disparities have been documented, there is a need for increased attention on potential underlying drivers of these disparities that are rooted in the Black experience. We know from existing research on Black health and wellness that racism is linked to some poorer physical and mental health outcomes. This project will examine the impact of racism and resulting racial trauma on the mental health outcomes of Black parents of autistic children (ages 3 -9) as well as the downstream consequences that parental racial trauma has on child behavior and development.

Supporting Early Care and Education Providers In Early Intervention To Implement Evidence Based Practices for Toddlers with Autism and their Caregivers

The proposed study will employ several methodologies including single-case design and qualitative methods to explore processes and drivers necessary to support early intervention (EI) providers in using online modules with embedded coaching supports to: (a) increase their own knowledge and use of evidence-based practices (EBPs) and (b) support EI providers to coach caregivers to use EBPs. The study will examine factors that lead to effective EI services empowering caregivers of toddlers with autism to embed EBPs into their everyday routines and activities. We will collaborate with EI providers and caregivers of toddlers with autism to examine the extent to which online EBP modules with ongoing implementation support: •are perceived as useful and relevant to EI providers •effectively support EI providers and caregivers to embed EBPs with fidelity We also intend to: •determine if and how provider and caregiver use of EPBs impacts child coordinated joint engagement •explore provider and caregiver perceptions related to EBPs and implementing them By examining perceptions and outcomes related to implementing EBPs, the study may enhance the quality of EI professional practice and improve outcomes for children with autism and their caregivers.

UT3 Autism Intervention Research Network on Behavioral Health (AIR-B)

Validation of an outcome measure of early social-communication for young children with ASD

Validation of an Outcome Measure of Early Social-Communication for Young Children With ASD

The goal of this project is to validate the Early Communication Indicator for Autism Spectrum Disorder (ECI-ASD) using a robust and representative multi-site sample of well-characterized children with autism spectrum disorder to determine the psychometric features of this instrument and its ability to detect change over time.

Frank Porter Graham Child Development Institute

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